Gabe and his parents talk about and demonstrate the importance of honoring choice. As a mentor, how will you assist providers to understand that all people, regardless of the severity of their disability, have choices?
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QUIZ
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test provides an opportunity to apply what you have learned in this
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[The following "Resources" section is for further study if you
so desire. We encourage you to look at the Resources when you
are deficient in an area or if you want to learn more about a
particular subject. The material in this section has been helpful
for us in our knowledge of the particular subjects.]
On What is Self-Determination:
Explore the Center for Self-Determination website by clicking
on: www.self-determination.com.
This website has a number of articles on the subject of Self-Determination
and publishes a monthly newsletter with related information.
This link: www.self-determination.com/about/aboutCSD.html
explains what the Center on Self-Determination does and what its
mission is. Thomas Nerney, discusses
the tools of Self-Determination in this article. He focuses on
some ideal standards for the Support Broker: independence from
service provision, real authority, provide individual budget isolation,
conflict of interest free, and close to the person and community.
Communicating
Self-Determination: Freedom, Authority, Support and Responsibility The National Resource Center on
Supported Living and Choice in Syracuse, NY developed
this short fact sheet defining what Self-Determination is and
what it is not. As well, the fact sheet gives four principles
and two values supported by Self-Determination.
Fact
Sheet on Self-Determination Speaking For Ourselves provides this simple
explanation of the what they see as four principles of Self-Determination.
Principles
of Self-Determination John O'Brien and Connie Lyle O'Brien
provide in this case study an important picture of the challenges
and joys of understanding the limits of Self-Determination. "The
reason to reform services in line with the principles of self-determination
is to increase the control people with developmental disabilities
have over the conduct of their own lives, to remove the power
that service systems have to dictate such fundamental matters
as where and with whom they live and who assists them, and consequently
to decrease the opportunity that service workers have to rule
over those they assist by imposing their opinions and inclinations
as a rule of conduct." This study of Sheri, and her parents, Marge
and Earl, demonstrates the real life application of Self-Determination
in the life of a woman with significant disabilities.
Self-Determination:
From New Initiative to Business as Usual
Pages 1- 7 May 2001 Common Sense Newsletter Ann Turnball and Rud Turnball
outline the key issues in practically enacting the principles
of Self-Determination through their own experiences with their
son, JT. The authors are optimistic about the future but note
that there is a great deal yet to be accomplished and many people
with significant cognitive disabilities that have yet to be reached
by this paradigm.